Multiple Sclerosis Blog - Everyday Health

Multiple Sclerosis is a disease that, each of us knows, will/can/does change from day to day. With that fact set, it is important to understand where we are; maybe not from one day to the next, but certainly from one doctors visit to the next.

As this community is ever-growing and assuredly one of the most helpful online forums on the topic that I know of, I thought we might have an open discussion as to how you keep track of your MS. Many come to these pages when they first think they might have MS or hear the words we all know too well, ?you have Multiple Sclerosis?.

Like stepping on the scale every hour to see how you are doing with a weight loss goal, over analysis is far from a helpful evolution. While a daily inventory can be helpful in assessing our capabilities on one day versus another, 365 progress reports are more than I think we need.

Many of you use our monthly ?How?s Your MS Today?? blogs to keep account going back several years. Some use written journals and I?ve even heard (thought I don?t consider myself smart enough for a smart phone) of folks using different ?apps? on their smart devices to keep track.

This information can be useful in our daily life as well as when we visit our doctors.

As I am not always aware of how I appear to be coping with something MS (and I?m often not coping as well as I think I am), checking in with someone close to you may help in keeping tabs on our progression and our coping. While Caryn may not always tell me in the moment, I am sometimes surprised by her take on what?s going on with my mind and body.

We all keep track in some way; some more formally, some not so much. As well as sharing how you attend to the course of your MS, I?m wondering if you might also share how these observations might have helped.

The more we know about a life with MS, the better we can live our lives. Also, I find, the more I learn that I have yet to learn.

Wishing you and your family the best of health.

Cheers

Trevis

Don?t forget that you can also follow me via our Life With MS Facebook page, on Twitter, and our new group on MS Connection.org. Check out our bi-monthly blog for the UK and look for our Very Special new monthly blog for the National MS Society. And don?t forget to check out TrevisLGleason.com.

Source: http://www.everydayhealth.com/blog/trevis-life-with-multiple-sclerosis-ms/keeping-track-of-multiple-sclerosis/

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